What Is Marfan Syndrome?
Marfan syndrome is a genetic disorder that was first described by the French doctor Bernard J. A. Marfan in 1896. It affects many organ systems, including the eyes, skeleton, lungs, heart and blood vessels. (more)

 
 
Upcoming Events
August 2-5, 2012 - 28th Annual NMF Conference -  Chicago, Illinois

The 2012 National Marfan Foundation annual conference is in Chicago this year from August 2nd through the 5th.  Register today online at www.marfan.org. Hurry because early-bird registration expires on June 26th!

 
 
July 27, 2012--Moonlight Stroll

Click Here for Moonlight Stroll Brochure
  • To register, please fill out form on brochure and mail to included address
  
   
Brochures are in PDF format and require Adobe Acrobat Reader to view.

 
   
   
   
 

July 28, 2012--Walk/Fun Run

Click Here for Walk/Fun Run Brochure

Click on one of the links below to register for the event.  
   
 

 
 

Click on image below for route map

     
Fundraising
   
       

Recipes from the Heart Cookbook

Click here to order

This recipe book features nearly 700 mouth-watering recipes from around the world. Books cost $20 plus $2.50 S & H. All proceeds will go to the Heart of Iowa Chapter of the NMF Conference Scholarship Fund.

  

   
 
     
Archived Newsletters
newsletters are in PDF format and require Adobe Acrobat Reader to view.
 
Heart Happenings Spring 2011 Newsletter
Heart Happenings Spring 2009 Newsletter
Heart Happenings Winter 2009 Newsletter
Heart Happenings Winter 2008 Newsletter
Heart Happenings Summer 2007 Newsletter
Heart Happenings Winter 2006 Newsletter Pictures from past events
Heart Happenings Fall 2006 Newsletter
Heart Happenings Summer 2006 Newsletter
 
Past Event Information
January 29, 2011 -- Drink For a Cure

 

Click here for Drink For a Cure information

 
 

Click here for Donations
 

 
 

Click here to order Drink for a Cure T-shirts
   
 

 
     
Des Moines University
Presentation to Osteopathic Students
   
Articles    
Woman's Day 2007 Article featuring Haley Dostalik
 
Health Questionnaire Research questionnaire about the musculoskeletal issues experienced by those with Marfan Syndrome  
     
     
Links    
National Marfan Foundation Official website for National Marfan Foundation  
Marfan Life Jeanette Navia's website about life with Marfan Syndrome  
     
     
Contact Us    
Teri Dean President (515) 263-1948 or (515) 371-5633